Wednesday, October 28, 2020

It was a long night last night. Around 3:45 I had to get up and go to the bathroom. I continued to have to get up and go seven more times. That made for a night of little sleep and a sore ass.

I had sent a note to the Gastrointestinal PA I had seen last week yesterday evening. I updated the note this morning and told her about my night. I also noted my temperature has been rising again and my pulse rate is faster than normal.

Her office called this morning and sent me to the clinic in Emporia to get a container so I could provide a stool sample. I couldn’t go while in town so came home and was able to provide one. Jim took it to town for me to drop off at the clinic. I probably won’t hear before morning what the results are as it takes 12 hours to read the results.

Feeling crummy and tired today. I am so tired of this. I feel like I ran into a brick wall.

I looked up what happens next when the antibiotic treatment fails. They can increase the dose from 125 to 500 and possibly admit me to the hospital for IV therapy. The article I read strongly recommends consideration for a fecal matter transplant. They don’t do that in Topeka so I would have to be referred some where else to have that done. We will see what happens tomorrow when the test results come back.

From what I read it can be very difficult to get rid of C Diff once it starts to not respond to antibiotic treatment. The problem becomes what it does to the colon and it can turn deadly if it causes enough damage to the colon. Thankfully I don’t have the symptoms of that yet. Hoping the PA can come up with a plan to prevent that from happening.

It is warmer today on the prairie. It is in the mid 40’s. I went down this morning and let the chickens outside as the forecast calls for rain this afternoon that is to last through the night. I wanted the chickens to get some fresh air while they could. The snow we got earlier this week is all gone except for the very sheltered places in the yard.

Stillwater had a bad ice storm Monday. Curious to know if Jim’s place has any trees down. We are to go there Friday unless we decide I need to stay closer to home for treatment options.

Going to take a nap after I finish writing and make up for some lost sleep. I am worn down emotionally and physically. Maybe it is a good thing I don’t know how long this is going to go on as right now I feel like I can’t take much more of it. Hopefully we will get some answers tomorrow and a plan that will work.

Better days are ahead – I just need to hold on until then. This sucks though and I am so tired of it.

Grateful for treatment options, grateful the PA responded quickly to my notes, and grateful for better days ahead.