I went to the Gastrointestinal doctor today. I saw the PA who seems very competent. Unfortunately what she told me was a bit discouraging. She wants me to go back on the same antibiotic but this time stay on it for 12 weeks with a titrated schedule. She said that is what my doctor should have done when I have the 2nd reoccurrence.
If that doesn’t work she has one more antibiotic for me to try. If that doesn’t work she will refer me to an infectious disease doctor. Her office only can take a C Diff case so far.
She also wants me to contact my doctor and get two shots in my butt 24 hours apart so I can get off the antibiotic that was prescribed for the UTI. I called my doctor’s office but haven’t heard back yet.
I am a bit depressed thinking about being on the same antibiotic for 12 weeks. I didn’t have a very good course of it the 3rd time I was on it. Hoping that it will be smoother sailing this time.
I was hoping there was some procedure they could do to speed the healing along. I feel like I am back at square one again for the fourth time. I guess I have to trust they know what they are doing and that things will get better.
It is funny because I had asked my doctor when I had the second course of this if I needed to be on the antibiotics for longer. He assured me I didn’t. Maybe he needs to do some research and update his knowledge level.
She told me I didn’t have to be quarantined except on the days that I have active diarrhea. That is good news – 12 weeks would have been a long quarantine. We can share the same bed but she recommends we each use our own bathroom as that is where it is most likely to get transmitted.
I will get to acceptance of what is – it just takes me a hot minute or two to get there. Guess I was hoping for a quick miracle and don’t feel that is what I got today. I know not to get my expectations too high but forgot that today.
I finally got a call from the Central Scheduling office so Jim and I can get appointments with a new doctor. I had sent a request to them ten days ago and hadn’t heard back from them. I sent an email to them over the weekend to ask why they hadn’t called. We both had to have our medical records transferred and they will then determine if they will accept us as patients. If they do they will call and schedule an appointment for us. Who knew it would be this complicated.
Walmart just sent me a text and let me know the medication is out of stock but they will have it in 1 – 2 days. Hoping they get it in quickly so this fourth round doesn’t get too far along before we stop it again.
Got a letter back from my coach for the Hot Line. She offered to do some problem solving for me but I need some time to cool off before I can do that.
I didn’t sleep very well last night. I think I will take a long nap this afternoon and get some sleep. Maybe that will help my attitude right now. It is cloudy and cold outside and that doesn’t help either. I am cranky and grumpy right now.
Grateful for a safe trip to Topeka, grateful for a PA that seems competent, and grateful this too shall pass – maybe like a kidney stone but it will pass!

I’m sorry it will be such a long haul, Kay, but hope you’re now on your way to a permanent recovery.
Hang in there. I’m cheering you on!
Kay, have you considered your chickens being the carrier? I don’t have a clue, but I always think about animals when people are experiencing chronic health problems. I know you have been so careful in your personal life, so you need to think outside of the box. Just my 2 cents worth, my friend! Good luck!