Monday, May 4, 2020

I have spent most of the day on the phone. The first call was with my Endocrinologist. I remember each time I talk to her why I appreciate her. She is patient and explains things in a way that I can understand. She never rushes me and always asks how “I” am doing outside my thyroid issues.

I feel reassured and like I am not crazy after all. I thought I was crazy for thinking that I swing high and low after being sick. She explained some people do that after having their thyroid removed and there is even a name for it. I can’t remember what it is though. She said my body is trying to heal itself and can over or under compensate and it can send the TSH levels high and then they crash.

All the symptoms I have been having of a fast heart beat, low blood pressure, extra sweating, and poor sleep indicate that I am being overdosed with my medication. My family doctor raised my dose when I had my levels checked after being sick in March. She said she doesn’t adjust levels after a patient like me is sick. She waits at least six to eight weeks to check levels and then adjusts if needed. She said she can get a false high or low if the levels are checked before then. Who knew?

I told her I notice when I start a new bottle of the medication that it takes me a couple of weeks to adjust to the new bottle – even when the dose is the same. She said that is not unheard of. Some patient’s bodies are more sensitive to changes of the medication and generic medications can change the material they use that binds to the medication. Most people don’t notice the difference but some can. She sent a new prescription in for me that is not the generic version. It should provide more consistent results for me.

She doesn’t want me to get the Ultrasound done in Oklahoma. She likes to have her people do them and she reads the results herself. She said she can pick up on minor changes easier that way. I am to make an appointment in Topeka to get an Ultrasound when I get moved back to the prairie. She said another month or so won’t make a difference and she will trust the results that way. She also ordered blood work but wants me to use her lab in Topeka. She said labs tolerance levels can vary and it is best to use the same lab each time.

She did say that it is safer to have levels that are too high than too low. If they get too low it can cause major heart damage and complications. I feel better with lower levels but she cautioned about aiming too low – especially since my body seems to bounce around a lot.

She also cautioned me about getting out and about even though the state is starting to reopen. She is concerned that if I got the virus I would have a tough recovery.

Unfortunately she said I will have to deal with this roller coaster reaction into the future. Some people can find a level and stay there and be OK but some people like me can’t seem to find a permanent balance point. I’m not doing anything wrong and I can’t change anything to help it. Just the way my body is.

I’m so grateful for her compassion and the way she explains things. I really was starting to think I was going crazy or was becoming mentally ill for bouncing up and down so much. Helps me return to my center knowing it is a physical reaction in my body instead of a mental one.

I went to the post office after my phone call with the doctor and got the mail situation sorted out. My temporary forwarding orders have expired. I can receive mail in both places but they will no longer forward anything to me. I can live with that.

I stopped at Walgreens and got a blood pressure machine. My Endocrinologist told me to start taking my blood pressure daily and to call her if it stays too low for more than a week. She may need to lower my medication again.

After I was home for a bit my mentor called. He talked to me for about an hour. It is always good to hear from him. He did an energy body scan on me and read my energy. All is well!

Nicole called me this afternoon to see what I had found out from my Doctor’s call. Always good to hear from my kids.

Jason texted me earlier today and I talked to Michelle yesterday. This coronavirus crisis has reinforced to me how important it is to stay in closer touch with my kids.

I heard that back home got hit with some strong thunderstorms today. Keith had egg sized hail in Lebo this morning. His roof and truck took a beating. Strong City was reporting dime sized hail so trusting all is well there. I didn’t get any reports that my solar panels were damaged. I am set up on some sort of automatic monitoring system that will alert me if there was any damage to them.

Other than talk on the phone I haven’t gotten much done today. It is in the low 90’s outside and very humid. Too hot for me to be out right now. Another side effect I experience is being temperature sensitive. I don’t handle heat or cold very well.

Fixing tacos for dinner tonight. That will be easy! Actually anything is easy once I know what to fix. We are trying to clean out Jim’s freezer this month and eat up what we have on hand and not buy anything extra. That will cut down on the amount of stuff we will have to move come June.

Grateful for the call from my doctor today and the mental relief it gave me, grateful for the call from my mentor, and grateful for the contact from my kids.